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Disinformation report hotline: 010-85061466
In China, public awareness and understanding around the rare neurodegenerative disease ALS is raising, thanks to the dogged campaigning of a couple: former tech executive Cai Lei, an ALS patient, and his wife, Duan Rui. Together, they're creating hope by establishing the world's largest ALS patient research data platform, pushing forward more than 40 drug pipelines into clinical trials. CGTN's Wang Qianhui interviewed Duan Rui, who gave up her own career to raise the funds so desperately needed to sustain ALS research and drug development. But for her, it's not a sacrifice, it's a mission that's worth giving her all. She now speaks out to challenge narratives about the disease.